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Down Syndrome: Visions for the 21st CenturyFrom Wiley-Liss
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Providing a comprehensive survey of the clinical, educational, developmental, psychosocial, and transitional issues relevant to people with Down syndrome, this book addresses the needs of family members, caregivers, and professionals alike. Edited in association with the National Down Syndrome Society, this up-to-date treatment incorporates the newest developments concerning sexuality, inclusion, transition into adulthood, and legislation, as well as a discussion of the Human Genome Project and the sequencing of chromosome 21.
- Sales Rank: #1780100 in Books
- Published on: 2002-06-15
- Released on: 2002-06-06
- Original language: English
- Number of items: 1
- Dimensions: 9.09" h x 1.04" w x 6.20" l, 1.52 pounds
- Binding: Paperback
- 473 pages
- ISBN13: 9780471418153
- Condition: New
- Notes: BRAND NEW FROM PUBLISHER! 100% Satisfaction Guarantee. Tracking provided on most orders. Buy with Confidence! Millions of books sold!
Review
"This volume is a comprehensive collection of articles representing a wide range of disciplines…it will be a valuable addition to the bookshelves of families, medical staff, educators, and researchers." (American Journal of Medical Genetics, August 15, 2004)
“...a comprehensive compilation of the myriad issues facing individuals with Down syndrome and their families across the lifespan...this book, compared to other tomes of highlights from various conferences, seems to contain more bang for the buck as the issues it covers are extremely pertinent and could stand alone apart from the conferences...this book will stay on my shelf.” (Journal of Genetic Counseling, Vol. 13, No. 1, February 2004)
"This book will be of great interest to anyone wanting to have the latest information about this genetic disorder..." (family2000.org.uk, 9 September 2002)
"...puts foward some of the visions and thoughts in an optimistic way and is therefore recommended..." (Int Jnl of Adolescent Medical Health)
"...puts forward some of the visions and thoughts in an optimistic way and is therefore recommended..." (Int Jnl of Adolescent Medical Health, Vol.15, No.1, 2003)
"I...consider a copy of this book a must for every institutional and personal library." (Journal of the National Medical Association, March 2003)
"...exceedingly valuable for a wide spectrum of individuals: parents, professionals, caregivers, and researchers..." (American Journal of Human Genetics, Vol. 72, 2003)
"...exceedingly valuable for a wide spectrum of individuals: parents, professionals, caregivers, and researchers..." (American Journal of Human Genetics, Vol. 72, 2003)
"...a terrific compendium of the wide array of topics...whatever the challenges that lie ahead...we are much better prepared by the information and vision provided by this excellent book." (Archives of Pediatrics and Adolescent Medicine, May 2003)
"...a useful reference tool for families and service providers." (Human Genetics, No.113, 2003)
Review
"This landmark book will be a welcome addition to both families and professionals who seek the most current information on Down syndrome. This one volume is an A to Z collection." —Jo Ann Simons, Executive Director, East Middlesex ARC, Reading, MA
From the Back Cover
More than 350,000 individuals in the United States alone are affected by Down syndrome, a genetic disorder related to the presence of an extra copy of chromosome 21. Down Syndrome: Visions for the 21st Century is designed to provide a comprehensive and up-to-date treatment of the current issues of self-determination, education, and advocacy, as well as the most recent research developments.
Providing a comprehensive survey of the clinical, educational, developmental, psychosocial, and transitional issues relevant to people with Down syndrome, the book is structured to meet the needs of parents and professionals alike. The controversial topics of alternative and nonconventional therapies are included alongside the best practices of top experts in the fields of family support, supported living, and life in the community. Down Syndrome incorporates the newest developments concerning issues of sexuality, inclusion, transition into adulthood, and legislation and features a discussion of the implications of the Human Genome Project and the sequencing of chromosome 21. The book comprises ten chapters covering:
* Self-Determination
* Self-Advocacy
* Advocacy
* Role of the Family
* Health and Clinical Care
* Research
* Psychosocial Issues
* Education/Inclusion
* Communication, Math, and Language Skills
* Turning the Vision into Reality
Down Syndrome: Visions for the 21st Century assumes the stated mission of the National Down Syndrome Society: to ensure that all individuals with Down syndrome are provided the opportunity to achieve their potential in community life. Parents, family members, individuals with Down syndrome, advocates, educators, and physicians will benefit from this peerless guide.
Most helpful customer reviews
23 of 23 people found the following review helpful.
A collection of very interesting articles
By Thomas Paul
At the NDSS annual conference in Washington, DC in 2000, the sponsors asked the participants to share their ideas. This book is a result of that request. Many of the names will be familiar to those who live in the world of Down syndrome. There are articles by Martha Beck Ph.D. and Siegfried Pueschel M.D. on the role of the family; Len Leshin M.D., Pat Winders P.T., and William Cohen M.D. on health issues; George Capone M.D. and Joan Medlen R.D. on psycho-social issues; and Chris Burke on living with Down syndrome; as well as a host of others. The book also features articles on communication, inclusion, advocacy, research, and self-determination. There is a wealth of very useful information in this book. David Patterson Ph.D. writes about the human genome project and what impact it may have on understanding Down syndrome. Libby Kumin, Ph.D. writes about maximizing communication and language skills in infants, toddlers, children, and adolescents. Patricia Logan Oelwein, M.Ed. writes about math and reading skills in children with Down syndrome. There are also a few lesser known names in here such as John Peter Illarramendi, Jeffrey Mattson, Mia Peterson, and Joshua G. O'Neill, all people with Down syndrome who write about their lives, hopes, and dreams. They remind us that people with Down syndrome can achieve a great deal and can live wonderfully fulfilling lives. This isn't a book for a new parent and it certainly shouldn't be your first book on Down syndrome. There are other books such as "Babies with Down Syndrome," that would be a better choice as a first book. But this book does provide a lot of very useful and interesting information. Anyone interested in finding out what is going on in the world of Down syndrome will want to get a copy.
19 of 20 people found the following review helpful.
Down syndrome
By Joav Merrick
Down syndrome have existed for thousands of years. 3,500 years ago the Olmecs tribe, who lived around the Golf of Mexico made wall reliefs, sculptures and other artefacts that showed handicapped people with Down syndrome features around their temples that seemed to represent a mystical attitude or religious significance. They believed that children with Down syndrome were the result of mating between senior women of the tribe with the jaguar, the sacred totem of the Olmecs and therefore the child with Down syndrome was regarded as a god-human hybrid, the "natural" offspring of this close union with the gods. A number of cave paintings describe sexual relationship between a jaguar and a human and it seems that these children were singled out for special treatment. As they were more frequently born to older and therefore more senior members of the tribe and only a few of the children would survive, gave them a rarity value. Persons with Down syndrome at that time were looked upon as sacred and having religious or superhuman significance.
John Langdon Haydon Down (1828-96) was the first physician to describe in detail the syndrome that came to bear his name. In 1866 he tried to classify the various forms of " feeblemindedness" and concluded that individuals with mental disabilities belonged to different ethnic varieties, such as Ethiopian, Malay and Mongolian. We have learned much since and this book edited by Willian I Cohen, Lynn Nadel and Myra E Madnick in association with the US National Down Syndrome Society (NDSS) will give us more thoughts as we enter the new century.
The book has 42, all American, contributors with a multidisciplinary background, who participated in a conference created to try and look into aspects for the next century concerning persons with Down syndrome (DS). There are 32 chapters devided into ten sections: Self-determination, self-advocacy, advocacy, role of the family, health and clinical care, research, psycho-social issues, education and inclusion, communication, math and language skills, and turning the vision into reality.
The vision for persons with DS is that they will be included in all aspects of family, school, work, social, recreational and community life with equal opportunities and rights. Much has been achived, but there is still a long way to go, not only the the United States, but also world wide.
This book puts forward some of the visions and thoughts in an optimistic way and is therefore recommended reading for both family members, caregivers and profesionals working with person with Down syndrome.
2 of 8 people found the following review helpful.
Terrific Compendium
By A Customer
"...a terrific compendium of the wide array of topics...whatever the challenges that lie ahead...we are much better prepared by the information and vision provided by this excellent book." (Archives of Pediatrics and Adolescent Medicine, May 2003)
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